ESPERANS: Paediatric Sleep Apnea Survey

Little patient-centred evidence exists on the diagnosis, care journey, and burden of obstructive sleep apnea in children in France.

Partners4Patients Foundation's role

Building and coordinating the stakeholder alliance, fundraising and partner engagement, co-creation and governance support

Outcome

A co-created national survey generating actionable evidence for improved diagnosis, care, and health policy.

About the project

Supporting the ESPERANS Initiative, a survey on the care pathway and burden of paediatric sleep apnea led by an alliance of Alliance Apnée du Sommeil, Santé Respiratoire France, and IDEAS, helping build the stakeholder alliance, secure funding, and co-create the survey with patients, caregivers, healthcare professionals, and researchers so it stays scientifically robust and patient-centred.